When I look at my profile facebook page it looks like I have this super-interesting, fun life with tons of amazing friends. It is kind of a reminder of how lucky I am. But what is funny is that the truth lying beneath it is not so rosy. Like, I wrote how we went to Miami yesterday to get passports for the kids since we are going to England next week to attend my Grandmother's memorial service. Anyway, this all looks very interesting, but I don't mention of course how the drive was really scary for me because of my anxiety disorder (and I was the passenger not the driver.) I feel like many of my posts have underlying things in there that I don't mention and I wonder if this is the same for other people. When I look at my high school friend's profile pages, sometimes it looks like everyone has this amazing life, but I have to remember that the profile pages are what people choose for their books "cover."
My friends all do Facebook and when we get together we take lots of pictures and post them all. It is like a big advertizement for how cool we are or something when the opposite is true. We are are struggling and have problems, some of us serious problems, amongst of course, joy also and a strong bond of friendship. But the photos show us all smiling and hanging out and having a great time with the girls. They don't show that we talked about autism or my friend's daughter who is regressing because of her seisures. All people see when they look at my page is the smiles, the friends, the summary of each story that has so much more to it than what is posted.
I feel like I have been posting a lot of deaths recently. My cat/1st baby died two weeks ago and everyone comforted me with their 2 sentence words of sympathy. Then my Grandma died and I posted something about that and got more sympathy. It is just knid of weird really. So why do I post? I don't know. I suppose I want my friend's to know this stuff. It is like letting everyone know without having to email them and if my friend's want to know what is gong on it is very easy for them to check in on my profile page. The very weird part though is the people who I am "friends" with who I am really just aquaintences with. I wonder if they get tired of my "feeds" about my life. I guess they can easily not see my feeds anymore. I wonder how many people have done that.
me.
2 comments:
I have been reading your blog and I am really moved by your words. My son was diagnosed with High functioning autism yesterday. I have suspected this for a while and I have been doing alot of research.
First I really appreciate you keeping this blog up to date because it helps to hear about your experiences dealing with life and having a child with Autism.
It sounds like AJ is doing better after going on the GFCF diet and getting the B12 shots. We are meeting with Dr. Nuebrander in NJ and are planning on trying the B12 shots.
Is AJ still on the GFCF diet and is she stil taking the B12 shots?
What other treatments has she taken?
Also I am thinking about getting into the Wedding Video business and it has been hard to get it started. Everyone loves my video editing of family events and always tell me to start my own business.
What is it like filming/editing weddings?
Again, thank you for the blog it is a great resource and I look forward to your comments and posts.
Autism Dad
How come you have stopped blogging? I just came across your blog and I feel like I know you. Because a lot of what you are saying is my life. I have a daughter who is on the spectrum. She is absolutely an amazing little lady just like your AJ. She is in second grade right now and I feel this has been the hardest year for her yet. It seems as though some things are getting easier and some more difficult. I would love to somehow connect with you. I have yet to meet anyone with a girl who has autism. Take care, Jeanine
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