Showing posts with label love. Show all posts
Showing posts with label love. Show all posts

Friday, September 25, 2009

Bullying....anxiety......getting better....happiness.

So my friends and family do not read this blog. They know I have a "secret" blog and that is about it. Isn't that weird? I like that I can just pretty much say what I want, say the truth and exactly how I feel.. and get some feedback from other autism moms and such.

Bullying the autistic kid:

AJ came home from school yesterday saying that some kid, Thomas told her she was "really stupid," and "not pretty." She said he came over and pushed her in the playground and then when they were back inside the classroom he threw her name tag in the trash and that her teacher didn't have anymore tape...whatever that meant...but she was very upset about it. She said she didn't want to go to school anymore now. So I called her teacher right away.

Her teacher had given me her home phone at the beginning of the year and I decided this was the time to use it. I called and left a message about what AJ had told me. I couldn't help but think though that maybe this Thomas kid perhaps had a crush on AJ. The thing is, is that AJ is quite remarkably pretty and people often comment on her looks and I know the kids in her class do think she is pretty. So he was trying to get a rise out of her (probably because she was ignoring him). But even so, he mustn't be allowed to torment her. She said he had left his soccer match with the boys to come over to her to push her, then went back to his soccer match. That sounds like a 1st grade crush to me really. But even so, she was threatened by it and didn't want to go to school because of it, so it needed to be stopped.

Well her teacher did not call me back last night so I went in a little bit early this morning and her teacher saw me and said, "Ahh! I got your message. We need to talk!!".

We stepped outside the classroom and her teacher told me that she didn't call me back last night because she didn't get my message until 11pm, but then she was so troubled by it that she couldn't sleep afterwards. So she looked online and chatted with other teachers about what to do. She then told me that her plan was that she needed me to tell her 3 things that AJ does, that shows she is super smart, and that she will share these 3 things with the rest of the class.

So I said, "She often tells me, 'Mom, when you are 46 I will be 16' and she can figure out pretty much any age difference between herself and any member of the family at any time in our future."

Her teacher said, "OK, so she can do double digit addition and subtraction in her head. Give me 2 more things."
"Well, she could read small words when she was only 2"
"OK, one more"
"She knew all of her states and capitals when she was 2."
"OK, perfect"
"But I don't think she knows them anymore though."
"That's OK, I've got my 3. What I'm going to do is have her aid take her out of the class and I am going to tell her class just how smart AJ is! Now I have to go in and teach." She hurried back inside her classroom, leaving me standing outside, holding Emmy, feeling a bit dazed.

So I went and got in the car feeling a bit troubled. It didn't seem like a typical way to approach this. I thought that she would take Thomas aside and help him and AJ have a dialogue about what was wrong, and then tell Thomas that it is not OK for him to push or call her stupid etc. But instead her teacher would be taking her out of the classroom, singling her out again, and addressing the whole class about the issue, who are all fine with her. So I sat in the car nd thought about going into the office and asking them to have the teacher call me when she gets a second. But I also didn't want to make a huge deal out of it. You have to pick your battles and since this was in the works of being resolved, I decided to trust her teacher and see how this odd approach went.

So when I went to pick up AJ this afternoon she came out with a huge smile on her face. Her teacher, the assistant teacher, and her aid all told me that AJ had a great day and that their talk with the class worked really well. Her teacher then told me that the kids in her class are very smart, very competitive and judgmental. She said that explaining how smart AJ actually is, made them have more respect for AJ and that she thought it helped immensely. She said that she told the class that they have to treat everyone properly, not just AJ. That sounded pretty good to me.

Taking AJ out of the classroom didn't seem to have a negative affect as AJ was really happy and even a bit chatty which is highly unusual. When we got in the car I asked her how it was with Thomas today and she said brightly, "It was really good!!!"
I couldn't help myself. I said, "See, I told you I could fix it."
I know that sounds totally self-serving, especially since I didn't fix it, her teachers did. But I wanted her to know that if she does confide in me when she has a problem, that I might actually be able to help her. So maybe this connection will keep her communicating with me when she is upset about something so that I can always try and help her.

I used to help my little sister when she was bullied. In fact, the only fist fight I have ever been in in my life was over some girl being mean to my sister. The same day my sister told me this girl was tormenting her in school, I remember I saw the girl that night in a teeny bopper dance club that we all went to and she walked past me and bumped me with her arm so I pushed her. She walked up and stuck her face in mine so I punched her right in the face. She ran away, which is funny because I am only 5'3" and was pretty skinny at that time in my life...I was 18. Anyway, the bullying of my little sister stopped and the girl, Jen, even apologized to me a year later for all of the stupid drama.

I helped my little sister another time when some kid, Ben, was yelling, "jew" at her in the hallway. The dumbest thing about that is that we are not even jewish. Our maiden name is jewish because my grandfather on my dad's side was, but everyone else wasn't and so no one, especially jews, consider our family to be jewish. But it was odd that he was yelling it at her to be, I don't know, racist or something. It was pretty disturbing.

The thing about my little sister is that she was very very pretty and never spoke a word in high school...not one word. So I think this kid was trying to get a rise out of her. But she hated school and didn't want to go because of this odd, nasty, yelling at her in the hallway. So I fixed it because I was friends with one of Ben's best friend's...a best friend who was older than Ben and I figured was kind of a mentor. So I called him up and told him what was going on and asked him to make Ben stop...and he did, and my sister was happy once again.

There is one time in my life that I was not able to fend off a bully. I was the one being bullied and I have always fended off anyone who tried to mess with me. I worked with her. She was my boss. And the difference between her and say, the boss in The Devil Wears Prada, was that she was physically threatening. She had slapped someone in the office before, she was huge, and CRAZY. She even told a coworker once about how she was going to kill everyone in the office. She had it all planned out...what gun she was going to use and who she would shoot in the back of the head and who she would shoot facing them etc. So as you can see, she was not your normal bully. She was a complete nutcase. But I kept working there. It was this terrible toxic environment and when I finally left, on the second to last day of my two weeks notice, I had a nervous breakdown at home, in the middle of the night. I had no idea what was wrong with me. I thought I was having a stroke. My hands were ice cold, my heart was racing and pounding, I could barely breathe. My husband (boyfriend at the time) took me to the emergency room and they examined me and told me I was having an anxiety attack. I was like, WTF?? They gave me some ativan and 3 more to take home with me. Then after that the anxiety came back for no reason. There was like a shelf when I tried to breathe, my heart was constantly racing. I couldn't get a full breath in. So I tried to go jogging but after my run, my heart didn't slow down and my breathing didn't get easier. I skipped my last day of work. Those bastards. Anyway...

I saw my doctor and when I went in there she said, yes, these physical things could be anxiety. I said that I couldn't fathom that anxiety could do make me feel so physically ill. So she gave me some Paxil and told me to try that. I went home and took a Paxil, thinking it would calm me down right away. DH was out somewhere and my anxiety actually got worse. I didn't know what to do with myself. I suddenly realized why people kill themselves and thought about suicide for the first time in my life. I thought about calling 911 but was too worried about what would happen. That was the worst few hours in my whole life. Well, at that time...before my sister's accident. Anyway, I finally called a psychiatrist in town and told her everything. She said it was very serious, to take one of those Ativan I got at the hospital right away and scheduled an appt to see me right away. I have to say that she pretty much saved my sanity, if not my life. I took ativan twice a day for a month until the zoloft she was giving me, kicked in. I went all the way up to 200mg of zoloft. Then it finally started working and I didn't need the ativan anymore. But it did weird stuff to me and I thought the weird stuff was my anxiety but I know now that it was side effects from the medicine. I felt like I had to clench my jaw and yawn all the time. Anytime I did exercize to get my heart rate up I got the yawns. I would get songs playing loudly in my head and I stopped playing and making music because it would stick in my head and screw with me. Especially in the morning. It was like the fight or flight symptoms never stopped, unless I was surpressing them with ativan. I knew the ativan was addictive and after a month, a bad idea to continue to take. So I didn't take more than 2 a day, one in the morning and one in the afternoon.

My biggest problem was that I was furious with myself for being "beaten" for not being stronger blah blah. I was so angry and disappointed in myself for being "crazy" although my psychiatrist assured me I wasn't. hmmmm....

Then after a couple of months, everything evened out and got so much better. I was seeing the psychiatrist twice a week and my diagnosis changed from post traumatic stress, to general anxiety disorder (I told her about my anxiety as a kid in middle school.) But it was the crazy boss who triggered this severe, crippling anxiety and it took years to get under control without medication...I would say 6 years to stop cropping up every few months or even weeks.

After my breakdown, I was on the very high dose of 200 mg of zoloft for 6 months. That means I was still on 200 mg on my wedding day. I finally went down to 100 mg after that, then weaned myself down to 50 mg when I got pregnant with AJ. I tried to go cold turkey during my first trimester and it was a disaster. But I think that my anxiety during the "cold turkey phase" was probably worse for AJ than the zoloft.

I only took a teeny tiny bit of zoloft while I was pregnant with Owen, and I took none this time while pregnant with Emmy. I didn't need it. All the anxiety melted away by my second trimester. I had never felt better in my life. I can't help but wonder if the awful shock and grief I felt from my sister's death, kind of rebooted my system. I'm not saying the shock was good for me, I mean I aged terribly over the 6 months following her accident, my whole family did too. But I think that mentally it changed some things, set them on a different paths...moved some paths around.

Now, I still have a bit of anxiety, but nothing like I used to have. My anxiety keeps me from driving out of town by myself or with the kids, and I never never drive on the interstate. That is also because of my sister's accident. But I am afraid of driving where one little mistake could instantly kill you. I am afraid of death, but not like I was when I was having serious issues, now it is in a way that I think most autism mom's fear it. Now I just feel like I need to be here for my kids, so nothing better ever happen to me. I also know that my parents and younger sister couldn't mentally survive another huge loss in our family.

So that is the history after my anxiety disorder was triggered. It had always been lingering as a kid, but didn't blow up until it was triggered. And perhaps that is how autism happens, it is just triggered like that too. Perhaps AJ will get better but always be a bit autistic, just like I am better but will always have a slight anxiety disorder. Who knows, perhaps with all of this new epigenetic research, maybe both my anxiety disorder and her autism will be cured. Hey, if they can cure anxiety in rats, they should be able to give me a little of that medicine.

If you stuck through this whole post, thank you :)
me.

Tuesday, July 8, 2008

#3 on the way

So I am 6 weeks pregnant. We used a condom with spermacide, but I guess you have to use it right from the beginning because we are living proof that if you wait a little first, you're gonna get pregnant! I've been a little stunned. The first two were not planned but they were in the plans and it was actually perfect timing. But we were done and I had my head wrapped around that. We were ready for the vacations to begin, maybe camping soon. We were ready for both kids to be in school so I could work during the day more and we could make some more money. But here I am with number 3 growing rapidly in there as I type. Of course I am happy. It is like nature makes you happy. What else are you going to be? Of course I am worried about autism and I am doing things differently this time. I am not going to eat a ton of chocolate for one...no tuna fish at all. I am eating organic healthy food but I will allow the occasional pizza binge. Today, to get myself excited or to drive home the reality, I bought two glass baby bottles online and a stainless steel sippy cup. And I think that I am somehow going to try and not have an epidural. I don't know. I won't commit to that because I got to 9 cm with Owen before I got the epidural and I can still feel the pain. But I think I am going to try.

Also a couple of weeks before my due date and after the baby is born I am not going to eat or consume anything with casein in it as I have read lots of articles that say it helps to calm colic, to cut out dairy. After having one child with autism and the other with first, dysphasia as an infant and asthma now. I am going to do my best to keep the environmental toxins as far away as I can. I also will not be doing any shots until this one is 4 years old. I hope it helps keep my new little one protected. It is so strange because you get the shots to protect your children, and it is so weird that I will not be getting the shots...to protect my children. I have learned that doctors don't know anything and the people who taught the doctors, don't know anything. What else is a doctor going to do though than tell you confidently that what they have learned is fact. How can you be a skeptical doctor? Well, I guess it is possible, in fact we have one for AJ.

So I am early on in the pregnancy but I am giving my little clump of multiplying cells lots of good energy and thoughts and early love. I have been lucky enough that my anxiety has not been popping up and I hope it stays that way. I am wondering if it going to be a boy or girl. AJ wants a sister and Owen wants a brother. I don't care, either way it will be amazing. I hope things work out. I hope I hope and I hope and I don't worry because worry doesn't help. But I am terrified in the most calm way possible. Hm,
me.

Tuesday, January 15, 2008

Friendship Put To The Test

Tonight I talked to my best friend, Taylor (since 7th grade) who's daughter, Maddie, is A.J.'s exact age. We were pregnant together with our girls. Taylor talked about how Maddie is all into soccer now and scores goals and she is really good. It was hard to listen without a little resentment, even though I am happy for them at the same time. It is very difficult to feel like that. It is sometimes easier to avoid even talking to her, to avoid the pain of hearing what A.J. would be doing if she didn't have autism. But I don't settle for that and keep working on one of my most important friendships, if not thee most important.

A.J. won't go after a soccer ball, when she does have it, if anyone tries to take it away from her she lets them have it then wanders off the field. When A.J. was 18 months, she would kick the ball around with D.H. all the time and she was an amazing little soccer player. I know that if she didn't have autism she would be so good at it...just a little star. She has the build for it. She isn't a skinny little thing like I was as a small child. She is muscular and solid like D.H. I find myself hoping that maybe....maybe, if I keep working on researching her treatments and the right nutrition, that maybe there is still a chance that she will aquire the confidence and skill it would take for her to be the star soccer player she was meant to be, before this thing...this autism crap robbed her of her gross motor skills. It robbed her of her fine motor skills too...she can barely cut paper. She is aware now of these difficulties she has and so I am going to try to help her. I want her to be able to ride a bike with us, like Maddie does all the time. I want that.

I don't think that Taylor knows that it is not OK to me that A.J. can't play soccer. I haven't come to terms with it and I haven't let go of the dream that she will be able to get "it" all back...the old A.J. before the autism regression. I don't want to lump A.J. into the autism catagory that does not recover. I want her to be one of these kids that gets better, that is able to ride a bike and run after a ball. So when Taylor puts A.J. in the category of other children she knows with autism, although it makes sense, I don't want to hear that Taylor has settled with A.J. being not as skilled as Maddie at soccer. A.J. is obviously not as skilled...but like I said...that is not OK with me and talking about it pretty much breaks my heart. It also breaks my heart that such an important friendship is so often put to the test because of this. Taylor is there for me and understands me in a way that no one else does. So sometimes I just can't beleive how she has no understanding of this whatsoever. I have tried to talk to her about it, but it is like she keeps forgetting or something. But on the other hand, she needs to be able to talk to me about her daughter. I know that. How do I ask her to leave out the soccer...and the reading...and cutting paper and wrapping Christmas presents by herself and the amazing and wonderful stuff Maddie does? How, as a best friend can I ask her not to share the triumphs of her little girl with me...that A.J. is so far away from doing? I don't. I don't and I just listen and I am sad and freaked out at how different our worlds are, and then I get over it. But sometimes I don't feel like being sad so I find myself calling her less often. But I miss her. Maybe I'll tell her.

me.