One email from the Generation Rescue site was asking for stories of recovered children. As I looked at it I realized that I do not have a recovered child. I have a little girl who is brilliant and who is hurdling the barriers that autism shoves in front of her daily, hourly...by the minute. But she does have autism and it wasn't that long ago that we were dealing with endless reverse pronouns and limited speech...no real conversations. In fact that was at the beginning of this school year. Now she will carry on a conversation and ask questions. She will play well with her brother, even make eye contact and she will approach children on the playground when we go to the park in our neighborhood, and she will end up playing with them. She is not typical. Her conversations are often quite odd, and often repetative, "Mommy how old are you?" I get that multiple times a day even though she knows how old I am but that transitions into endless questions about how old I will be when she is 27...and how old Owen will be when she is 45 and how old Emmy will be when she is 76. This goes on all day and I go through it all with her doing the math in my head like a rusty swing. When she talks to other children she seldom looks at them and her speech is very musical. But she has all sorts of phrases and expressions memorized and she uses them appropriately in a way that makes DH and me smile. She even says, "Oh OK!!" in a huff when we ask her to wash her hands for dinner. This is so great for me because it is so typical, but somehow it is a little more rehearsed sounding than a typical child.
So even though she plays the part of a typical child, she is not recovered, she still has autism and so maybe I shouldn't be playing the part of a mom with a recovered child. I should still be reading the articles. But I think I avoid them because I don't want to delve into more biomed. I wonder if I do more that perhaps I could help her even more. But it is such a huge commitment to do this diet so strictly and it is such a huge expense that I don't want to take it further. I am afraid to drive to where the DAN! doctors are ( OK so not recovered from anxiety disorder completely either I guess) and I don't want to shell out hundreds and hundreds of dollars for the appointments and the testing. I have so little time as it is, and researching and implementing biomed is a huge investment of time. So I play the part as if I am done with autism, but it is not done with us. Thank goodness many of my friends email me stuff because I do actually read those.
We still do the B12 shots and they still give us amazing results. I am very interested in the hyperbaric oxygen treatments but she will be terrified to sit in one of those tanks. I don't want to do that to her, but it might be amazing for her. I could take the articles with me to her pediatrician and ask her to prescribe it as a treatment perhaps. Or maybe I could ask her psychiatrist who diagnosed her (saw her once) to prescribe it as a treatment so our insurance would pay. Maybe it still wouldn't though.
I should be sleeping since Emmy is sleeping. I have a bit of mastitas sp?? or thrush or something, another pain in my butt..or boobs I should say. So nursing hurts. I have some "all purpose nipple cream" to put on but I need to bug Emmy's dr for some stuff to put in her mouth because we are passing the yeast back and forth. But I hope she will just call it in for us because I hate taking Emmy into the germiest place ever, the pediatrician's office. Fun stuff eh?
Bye for now,
me.
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